About

So here’s the backstory to this blog…

In January 2017, I took my son to an eye doctor as he had been complaining about double vision. The Dr. said that I should take him directly to the ER as he could see increased pressure on the optic nerves.

They did a catscan and found that he had a brain tumor which needed to be removed.

We were told to go to a different hospital where the expert in the country resides. There they did the operation which seems to have been successful and we were told that they removed all or almost all of the tumor.

It turned out to be malignant and medulloblastoma.

A couple of days after the operation, posterior fossa syndrome set in very severely meaning that my son regressed to having little functionality.

After a month we were sent to a residential ‘improvement’ center where they are giving him regular therapies.

We are also going daily for radiation to another hospital for 30 treatments as well as chemotherapy weekly. After that, there will be a break and then chemotherapy for about 50 treatments.

Our son Ro’i is 8 and a half years old. We also have 3 other children (GGB) of 10.5,5.5 and 3.5.

This blog is some of our journey and I hope that it can help others who come across the same issues that we do.

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